The cluster is led by Simon Craddock Lee, Ph.D., M.P.H., Associate Professor in the Department of Clinical Sciences. Dr. Lee is a medical anthropologist with expertise in qualitative and mixed methods research. Dr. Lee’s own research focuses on cancer health disparities in safety-net settings.
The Center for Patient-Centered Outcomes Research has also partnered with Johns Hopkins University to provide expertise to trainees and faculty in one of their areas of strength – stakeholder engagement – as well as systematic reviews, meta-analysis, and pharmacoepidemiology. We will present a video conference of the monthly Johns Hopkins University Evidence-Based Practice (EPC) journal club and DeCIDE/Center for Health Services Research and Outcomes research conference.
Based on the 2011 Agency for Healthcare Research and Quality (AHRQ) Engaging Stakeholders report, we define stakeholders broadly as individuals, organizations, or communities interested in the process and outcomes of research. Stakeholders include patients, consumers, health care providers, administrators, community groups, payers, purchasers, and policymakers.
Stakeholder engagement is the process of soliciting knowledge, experience, judgment, and values of those having interests in an issue. By engaging stakeholders, researchers can work in partnership to generate evidence that is aligned with and more informative to real world decision-making.
PCOR/CER findings will be more useful to relevant end users if stakeholders are engaged throughout the entirety of the research process, through topic identification, development, and refinement; protocol development; and interpretation, implementation, and dissemination. Engaging stakeholders early and maintaining relationships is key to building trust and credibility.