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| Home > Patient Care > For Patients & Public > Care Centers and Specialties > Dermatology >
Dermatology Patient Support Groups
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Search database using your browser Find or Search command. Started by the Dermatology Nurses' Association in May, 1994, the list is maintained by the Dept. of Dermatology, University of Iowa.

Disorders / organizations not listed may be under Rare Disorders resources, the List of National Genetic Voluntary Organizations of the Genetic Alliance (formerly The Alliance of Genetic Support Groups), or in the Library of The Family Village.


The Dept. of Dermatology and University of Iowa make no recommendation or endorsement of organizations listed. They are provided solely as a public service. Individuals must determine for themselves how to use the information provided. When making medical decisions, a physician should be consulted.


General Information 

  • American Academy of Dermatology
    930 N. Meacham Road
    Schaumburg, Illinois 60173-4965
    Phone: 847-330-0230
    FAX: 847-330-0050
    WWW: http://www.aad.org/

Patient Support Groups

  • AIDS 
    • WWW AIDS Information from Yahoo.
    • AIDS Hotline
      Tel: 800-243-AIDS (Illinois Only)
    • American Foundation for AIDS Research
      733 3rd Avenue
      12th Floor
      New York, NY 10017
      Tel: 212-682-7440
      FAX: 212-682-9812
    • Center for Disease Control
      National AIDS Information Clearinghouse
      Tel: 800-458-5231
    • Gay Men's Health Crisis
      129 West 20th Street
      New York, NY 10011
      Tel: 212-807-6655
    • HIV Testing & Counseling - STD Clinic
      Howard Brown Memorial Clinic
      945 West George
      Chicago, IL 60657
      Contact: Social Services Dept
      Tel: 312-871-5777
    • National S.T.D. Hotline
      Tel: 800-227-8922
    • National HIV / AIDS Hotline
      Centers for Disease Control
      English: 800-342-AIDS
      Spanish: 800-344-7432
    • Pediatric AIDS Foundation
      1311 Colorado Avenue
      Santa Monica, CA 90404
      Tel: 310-395-9051
      FAX: 310-395-5149
    • San Francisco AIDS Foundation
      P.O. Box 6182
      San Francisco, CA 94101-6182
      Contact: Pat Christen, Director
      In CA: AIDS Hotline; Tel: 415-863-AIDS or
      800-367-2437 (North CA only)
  • Albinism
    • National Foundation for Vitiligo & Pigment Disorders
      9032 South Normandy Dr.
      Centerville, OH 45459
      Tel: 513-885-5739
    • National Organization for Albinism and Hypopigmentation (NOAH)
      1530 Locust St.
      Box 29
      Philadelphia, PA 19102-4415
      Tel: 215-545-2322
      Tel: 800-473-2310 Answered 24 hrs
      E-mail: noah@albinism.org
      WWW: NOAH
  • Alopecia Areata
    • National Alopecia Areata Foundation
      710 "C" Street, Suite 11
      P.O. Box 150760
      San Rafael, CA 94915-0760
      Contact: Vicki Kalabokes
      Tel: 415-456-4644
      Fax: 415-456-4274
      WWW: NAAF
  • Anemia
    • Fanconi's Anemia International Registry
      c/o Arleen Auerbach, PhD
      Laboratory for Investigative Dermatology
      The Rockefeller University
      1230 York Avenue
      New York, NY 10021-6399
      Tel: 212-327-8862
  • Arthritis (Rheumatoid)
    • Arthritis Foundation
      P.O. Box 1900
      Atlanta, GA 30326
      Tel: 404-872-7100
      Tel: Information Line 800-283-7800
      WWW: Arthritis Foundation
  • Ataxia
    • National Ataxia Foundation
      2600 Fernbrook Lane, Suite 119
      Minneapolis, MN 55447
      Contact: Donna Gruetzmacher
      Tel: 763-553-0020
      FAX:763-553-0167
      e-mail: naf@ataxia.org
      WWW: National Ataxia Foundation
    • Ataxia-Telangiectasia Children's Project
      398 W. Camino Gardens Blvd, #104
      Boca Raton, FL 33432
      Contact person: Brad Margus
      Tel: 407-395-2621
      Tel: 800-543-5728
      (800-5-HELP-A-T) Mon-Fri, 8:30-5:30
      FAX: 407-395-2640
      WWW: http://www.med.jhu.edu/ataxia/
  • Behcet's Syndrome
    • American Behcet's Foundation, Inc.
      P.O. Box 54063
      Minneapolis, MN 55454-0063
      Tel: 800-723-4238
      Tel: 800-7BEHCETS
      WWW: American Behcet's Association
  • Bloom's Syndrome
    • Bloom's Syndrome Registry
      c/o Laboratory of Human Genetics
      The New York Blood Center
      310 East 67th Street
      New York, NY 10021
      Contact: James L. German, III, MD
      Tel: 212-570-3075
      FAX: 212-570-3195
  • Cancer
    • American Cancer Society
      1599 Clifton Road, NE
      Atlanta, GA 30329
      Tel: 800-227-2345
      Tel: 404-320-3333
      FAX: 404-325-2217
      WWW: American Cancer Society
    • National Cancer Institute
      Office of Communications
      National Institute for Health
      9000 Rockville Pike
      Building 31, Room 10A31
      Bethesda, MD 20892
      Contact: Paul Van Nevel
      Tel: 301-496-6631
      Tel: 800-4-CANCER
      FAX: 301-402-4945
      WWW: National Cancer Institute
  • Chicken Pox / Shingles (Varicella - zoster)
    • VZV Research Foundation
      36 East 72nd Street
      New York, NY 10021
      Tel: 212-472-3181
  • Cornelia de Lange Syndrome
    • Cornelia de Lange Syndrome Foundation, Inc
      60 Dyer Avenue
      Collinsville, CT 06022-1273
      Tel: 203-693-0159 Tel: 800-223-8355 M-F, 9-5
      FAX: 203-693-6819
  • Cutaneous T-Cell Lymphoma - Mycosis Fungoides
  • Dermatitis Herpetiformis
    • American Celiac Society
      58 Musano Court
      West Orange, NJ 07052
      Tel: 201-325-8837
    • Celiac Disease Foundation
      13251 Ventura Boulevard, Number 3
      Studio City, CA 91604-1838
      Tel: 402-558-0600
    • Celiac Sprue Association/USA
      P.O. Box 31700
      Omaha, NE 68131
      Contact person: Leon H. Rothmann
      Tel: 402-558-0600
      FAX: 402-558-1347
    • Gluten Intolerance Group (Dermatitis Herpetiformis)
      15110 10 Ave SW, Suite A
      Seattle, WA 98166-1820
      Contact: Cynthia Kupper, CRD
      Tel: 206-246-6652
      Fax: 206-246-6531
      WWW: www.gluten.net
  • Dermatomyositis
    • Myositis Association of America
      755 Cantrell Ave, Suite C
      Harrisonburg, VA 22801
      Tel: (540) 433-7686
      FAX: (540) 432-0206
      E-mail: maa@myositis.org
      WWW: MAA
    • Muscular Dystrophy Association
      3300 E. Sunrise Drive
      Tucson, AZ 85718-3208
      Tel: 602-529-2000
      Fax: 601-529-5300
  • Dermatology
    • Dermatology Foundation
      1560 Sherman Avenue
      Suite 302
      Evanston, IL 60201-4802
      Contact: Sandra Rahn Goldman
      Tel: 708-328-2256
    • International Foundation for Dermatology
      855 West 10th
      Vancouver, BC V5Z1L7 CANADA
      Contact: Stuart Martin
      Tel: 604-874-6112
  • Dermatopathology
    • Dermatopathology Foundation
      P.O. Box 377
      Canton, MA 02021
      Contact: Wendy Christison
      Tel: 617-821-0648
  • Dysautonomia
    • Dysautonomia Foundation, Inc.
      20 East 46th Street - Suite 302
      New York, NY 10017
      Tel: 212-949-6644
      FAX: 212-682-7625
  • Ectodermal Dysplasia
    • National Foundation for Ectodermal Dysplasia
      219 East Main Street
      Box 114
      Mascoutah, IL 62258
      Contact: Mary Kaye Richter
      Tel: 618-566-2020
      FAX: 618-566-4718
      e-mail: nfed1@aol.com or nfed2@aol.com
      WWW: NFED
  • Eczema
    • National Eczema Society
      163 Eversholt Street
      London NW1 1BU, United Kingdom
      Tel: 0171 388 4097
      Fax: 0171 388 5882
      WWW: NES
    • National Eczema Association for Science and Education
      1220 SW Morrison, Suite 433
      Portland, OR 97205
      Tel: 800-818-7546 or 503-228-4430
      Fax: 503-224-3363
      E-mail: nease@teleport.com
      WWW: NEASE
  • Ehlers-Danlos Syndrome
    • Ehlers-Danlos Syndrome Foundation
      6399 Wilshire Blvd., Ste. 510
      Los Angeles, CA 90048
      Contact: Linda Neuman-Potash
      Tel: 213-651-3038
      Fax: 213-651-1366
      e-mail: LooseJoint@aol.com
      WWW: EDS
  • Epidermolysis Bullosa
    • Dystrophic Epidermolysis Bullosa
      Research Association of America
      (D.E.B.R.A. of America, Inc.)
      141 Fifth Avenue
      New York, NY 10010
      Contact: Miriam Feder
      Tel: 212-995-2220
    • National Epidermolysis Bullosa Registry
      Clinical Coordinating Center
      University of North Carolina - Chapel Hill
      Department of Dermatology
      Room 137 - NCMH
      Chapel Hill, NC 27514
      Tel: 919-966-3321
      Tel: 919-966-6383
      WWW: National Epidermolysis Bullosa Registry

      National Epidermolysis Bullosa Registry (NEBR) - Southwest Clinical Site
      Stanford University School of Medicine
      WWW: NEBR

  • Genetic Disease
    • The Alliance of Genetics Support Groups
      4301 Connecticut Avenue, NW, Suite 404
      Washington, DC 20008-2304
      Tel: 202-966-5557
      Helpline: 800-336-GENE (4363)
      FAX: 202-966-8553
      e-mail: info@geneticalliance.org
      WWW: AGSG
  • Hansen's Disease
    See Leprosy
  • Hemangiomas
    See Klippel-Trenaunay Syndrome
  • Hemochromatosis
    • Hemochromatosis Research Foundation
      P.O. Box 8569
      Albany, NY 12208
      Contact: Margit Krikker, MD
      Tel: 518-489-0972
      FAX: 518-489-0227
  • Herpes
    • Herpes Resource Center
      American Social Health Association
      P.O. Box 13827
      Research Triangle Park, NC 27709
      Tel: 919 -361-8488 (Questions)
      Tel: 800 -230-6039 (Orders)
      WWW: ASHA
  • Histiocytosis
    • Histiocytosis Association of America, Inc.
      609 New York Road
      Glassboro, NJ 08028
      Tel: 609-881-4911
  • Human Papillomavirus
    • HPV Support Program
      American Social Health Association
      P.O. Box 13827
      Research Triangle Park, NC 27709
      Tel: 800-227-8922
  • Ichthyosis
    • Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)
      650 N. Cannon Avenue, Suite 17
      Landsdale, PA 19446
      Tel: 215-631-1411
      Fax: 215-631-1413
      e-mail: info@scalyskin.org
      WWW: FIRST
    • National Registry for Ichthyosis and Related Disorders
      Dermatology, Box 356524
      University of Washington
      Seattle, WA 98195-6524
      Contact:
      Geoff Hamill, RN
      e-mail: ichreg@u.washington.edu
      Philip Fleckman, MD
      e-mail: fleck@u.washington.edu
      Tel: 800-595-1265
      WWW: NRIRD
  • Incontinentia Pigmenti
    National Inconitentia Pigmenti Foundation
    41 East 57th Street, 5th floor
    New York, NY 10022
    Contact: Susanne B. Emmerich
    Tel: 212-207-4636
    Fax: 212-371-7345
    e-mail: nipf@pipeline.com
    WWW: NIPF
  • Klippel-Trenaunay
    • Klippel-Trenaunay Support Group
      KT Syndrome
      Contact: Judy Vessey
      5404 Dundee Road
      Edina, MN 55436
      Tel: 612-925-2596
      FAX: 612-925-4708
      e-mail: jvessey@uswest.net
      WWW: K-T Support Group
  • Leprosy (Hansen's Disease)
  • Lice
    See Pediculosis
  • Lupus Erythematosus
    • American Lupus Society
      260 Maple Ct, Suite 123
      Ventura, CA 93003
      Tel: 800-331-1802 (Info Line); 805-339-0443; 805-339-0467 (FAX)
    • Lupus Foundation of America, Inc.
      4 Research Place, Suite 180
      Rockville, MD 20850-3226
      Tel: 301-670-9292
      Tel: 800-558-0121
      WWW: Lupus Foundation of America
    • Lupus Home Page at Hamline University
      WWW: See the Lupus Home Page
    • Massachusetts Chapter
      425 Watertown Street
      Newton, MA 02158-1131
      Contact: Mimi LaCamera
      Tel: 617-332-9014
    • Bay Area Lupus Foundation
      2635 North First Street
      Suite 206
      San Jose, CA 95134
      Contact: Jo Dewhirst
      Tel: 408-954-8600 (Calif: 800-523-3363)
  • Lymphomatoid Papulosis (and Ki-1 positive cutaneous lymphomas)
    • Lymphomatoid Papulosis Central Registry
      Department of Pathology Beth Israel Hospital
      330 Brookline Avenue
      Boston, MA 02215
      Tel: 627-735-5886
  • Marfan's Syndrome
    • National Marfan Foundation
      382 Main Street
      Port Washington, NY 11050
      Tel: 516-883-8712
      800-8-MARFAN
      FAX: 516-883-8712
  • Mastocytosis
  • Melanoma
    • American Melanoma Foundation
      USC/Norris Cancer Center
      2025 Zonal Avenue
      GH-10-442
      Los Angeles, CA 90033-1034
      Tel: 213-226-6352
      FAX: 213-224-6925
    • Melanoma Foundation
      750 Menlo Avenue
      Suite 250
      Menlo Park, CA 94025
      Contact: Marsden S. Bloise, MD
  • Muscular Dystrophy
    • Muscular Dystrophy Association
      342 Madison Avenue
      Room 1426
      New York, NY 10173
      Tel: 212-557-8450
  • Mycosis Fungoides
  • Myositis
    • Myositis Association of America
      755 Cantrell Ave, Suite C
      Harrisonburg, VA 22801
      Tel: (540) 433-7686
      FAX: (540) 432-0206
      E-mail: maa@myositis.org
      WWW: MAA
  • Neurofibromatosis
    • National Neurofibromatosis Foundation
      95 Pine Street - 16th Floor
      New York, NY 10005
      Contact: Peter R.W. Bellerman
      Tel: 212-344-NNFF/6633 or 800-323-7938
      FAX: 212 747-0004
      E-mail: NNFF@aol.com
      WWW: Neurofibromatosis Online Service
  • Nevi
  • Ostomy
    • United Ostomy Association
      36 Executive Park
      Suite 120
      Irvine, CA 92714
      Contact: Darlene A. Smith, Director
      Tel: 714-660-8624 or 800-826-0826
  • Patient Advocates
    • Coalition of Patient Advocates
      6600 S.W. 92nd Avenue
      Suite 300
      Portland, OR 97223
      Tel: 503-244-7404
      FAX: 503-245-0626
  • Pediculosis
    • National Pediculosis Association
      P.O. Box 149
      Newton, MA 02161
      Contact: Deborah Altschuler, Director
      Tel: 617-449-6487
  • Pemphigus
    • The International Pemphigus Foundation
      1540 River Park Drive, Suite 208
      Sacramento, CA 95815
      Contact: Janet Segall, Director
      Tel: 916-922-1298
      FAX: 916-922-1458
      e-mail: jsegall@pemphigus.org
      WWW: www.pemphigus.org
  • Plastic Surgery
    • Plastic Surgery Research Foundation
      P.O. Box 2586
      La Jolla, CA 92038
      Contact: Edith Brookstein
      Tel: 619-454-3212
  • Porphyria
    • American Porphyria Foundation
      P.O. Box 22712
      Houston, TX 77227
      Contact: Desiree Lyon, Director
      Tel:713-266-9617
      Fax: 713-871-1788
      WWW: APF
  • Port Wine Stain
    • National Congenital Port Wine Stain Foundation
      123 East 63rd Street
      New York, NY 10021
      Tel: 516-867-5137
      FAX: 516-869-1278
  • Pseudofolliculitis Barbae
    • PFB Project (Pseudofolliculitis Barbae)
      1875 Connecticut Avenue
      Suite 1140
      Washington, DC 20009-5728
      Contact: Melvin A. Alexander
      Tel: 202-588-5300
  • Pseudoxanthoma Elasticum (PXE)
    • National Association for Pseudoxanthoma Elasticum, Inc. (NAPE)
      1420 Ogden Street
      Denver, CO 80218-1910
      Tel: 303 832-5055
      FAX: 806 743-1603
      E-Mail: derkhn@ttuhsc.edu
    • PXE International, Inc.
      Sharon F. Terry, President
      23 Mountain Street
      Sharon, MA 02067
      Tel: 781-784-3817
      FAX: 781-784-6672
      E-Mail: pxe@pxe.org
      WWW: PXE International, Inc.
  • Psoriasis
    • Canadian Psoriasis Foundation
      1565 Carling Avenue
      1306 Wellington St., Suite 500F
      Ottawa, Ontario CANADA K1Y-3B2
      Tel: 613-728-4000
      In Canada: 800-265-0926
    • National Psoriasis Foundation
      6600 S.W. 92nd, Suite 300
      Portland, OR 97223
      Contact: Gail M. Zimmerman, Director
      Tel: 503-244-7404 or 800-723-9166
      Fax: 503-245-0626
      e-mail: 76135.2746@compuserve.com
      WWW: National Psoriasis Foundation
    • Psoriasis Research Association
      107 Vista del Grande
      San Carlos, CA 94070
      Contact: Diane Bradley Mullins, Director
      Tel 415-593-1392
    • Psoriasis Society of Canada
      National Office
      P.O. Box 25015
      Halifax, NS B3M 4H4
      CANADA
      Tel: 902-443-8680
      FAX: 902-457-1664
    • Additional WWW Sites for Psoriasis available through Yahoo
  • Rare Disorders
    • Office of Rare Diseases
      National Institutes of Health
      Bethesda, Maryland 20892
      WWW: ORD
    • National Organization for Rare Disorders (NORD)
      P.O. Box 8923
      New Fairfield, CT 06812-8923
      Contact: Abbe S. Myers, Director
      Tel: 203-746-6518
      Tel: 800-999-6673
      FAX: 203-746-6481
      WWW: NORD
  • Rosacea
    •  National Rosacea Society 800 South Northwest Highway
      Suite 200
      Barrington, IL 60010
      Contact: Suzanne Corr
      Tel: 847-382-8971
      FAX: 847-382-5567
      e-mail: rosacea@aol.com
      WWW: NRS
  • Sarcoidosis
    • Sarcoidosis Family Aid & Medical Research Foundation
      460 Central Avenue
      East Orange, NJ 07018
      Contact: Geneva Ausley, President & Founder
      Tel: 201-399-3644 or
      800-203-6429
  • Scabies
    See Pediculosis
  • Scleroderma
    • Association des Sclerodermiques de France
      22, Avenue d'Immercourt
      62217 Tilloy les Mofflaines
      Tel : (33) 21.24.18.72
      e-mail : glitvack@pratique.fr
      WWW: www.cyberouest.fr/asf/
    • Scleroderma Federation, Inc.
      Peabody Office Building
      One Newbury
      Peabody, MA 01960
      Contact: Jackie MaGoon, Director
      Contact: Marte Coyle - President
      Tel: 508-535-6600
      FAX: 508-535-6696
      e-mail: sclerofed@aol.com
      WWW: S.F. Inc
    • Scleroderma Federation of the Tri State Area (NY, NJ, CT)
      1882 Teaneck Road
      Teaneck, NJ 07666
      Tel: 201-837-9826
    • Scleroderma Foundation of Greater Chicago
      175 West Jackson
      Room 917
      Chicago, IL 60604
      Contact: Pat Straessle, Patient Services
      Tel: 312-922-3532
    • Scleroderma Info Exchange, Inc.
      150 Hines Farm Road
      Cranston, RI 02921
      Contact: Nancy D. Hersy, Director
      Tel: 401-943-3909
    • Scleroderma Research Foundation
      2320 Bath Street, Suite 307
      Santa Barbara, CA 93105
      Tel: 805-563-9133
      Fax: 805-563-2402
    • Scleroderma Society
      1725 York Avenue
      Suite 29-F
      New York, NY 10128
      Contact: Mark Flagan, PhD., President
      Tel: 212-427-7040
    • United Scleroderma Foundation
      P.O. Box 399
      Watsonville, CA 95077-0399
      Contact: Nancy Wempe, Director
      Contact: Diane Williams, Founder
      Tel: 408-728-2202 or 800-722-HOPE
      FAX: 408-728-3328
      E-mail: outreach@scleroderma.com
      WWW: United Scleroderma Foundation
  • Self Help
    • National Self Help Clearinghouse
      33 West 42nd Street
      Room 620-N
      New York, NY 10036
      Contact: Audrey Garnter
      Tel: 212-840-1259
  • Sexually Transmitted Diseases
  • Shingles
    See Chicken Pox, Varacella
  • Sjogren's Syndrome
    • National Sjögren Syndrome Association
      21630 N. 19th Avenue
      Phoenix, AZ 85027
      Tel: 602-516-0787
      Toll-free number: 1-800-395-6772
      1-800-395-NSSA - M-F, 9-4
      FAX: 602-516-0111
    • Sjögren's Syndrome Foundation, Inc.
      333 North Broadway - Suite 2000
      Jericho, NY 11753
      Tel: 516-933-6365 Or 1-800-4 Sjogren
      Fax: 516-933-6368
      WWW: Sjögren's Syndrome Foundation
  • Skin Research & Education for ALL Skin Disorders
    • American Skin Association
      150 East 58th Street
      32nd Floor
      New York, NY 10155-0002
      Tel: 212-753-8260
      FAX: 212-688-6547
    • Dermatology Foundation
      1560 Sherman Avenue
      Evanston, IL 60201-4802
      Tel: 708-328-2256
  • Skin Cancer
    • Also see Melanoma

      WWW Sites for Skin Cancer via OncoLink at the Univ. of Pennsylvannia.

    • Skin Cancer Foundation
      245 Fifth Avenue
      Suite 2402
      New York, NY 10016
      Contact: Mitzi Moulds
      Tel: 212-725-5176
    • Nevoid Basal Cell Carcinoma Syndrome Support Network 162 Clover Hill Street
      Marlboro, MA 01752
      Contact: Susan A. Charron
      Tel: 508-485-4873
      Tel: 800-815-4447
      FAX: 213-244-6925
      E-mail: Souldansur@aol.com
      WWW: Pending update of site
  • Social Health
    • American Social Health Association (ASHA)
      P.O. Box 13827
      Research Triangle Park, NC 27709
      Contact: Sharon Brom
      Tel: 919-361-8400
      Orders: 800-783-9877
      FAX: 919-361-8425
      WWW: ASHA
  • Sturge-Weber Syndrome
    • Sturge-Weber Foundation
      P.O. Box 460931
      Aurora, CO 80015
      Tel: 303-360-7290
      Tel: 800-627-5482
      FAX: 303-360-7290
    • Sturge-Weber Foundation (SWF)
      PO Box 418
      Mt. Freedom, NJ 07970
      Tel: 201-895-4445
      Tel: 800-627-5482
      FAX: 201-895-4846
  • Tuberous Sclerosis
    • National Tuberous Sclerosis Association
      8000 Corporate Drive
      Suite 120
      Landover, MD 20785
      Contact: Carolyn Wilson
      Tel: 301-459-9888 or 800-225-6872
      WWW: NTSA
    • Tuberous Sclerosis International - TSI
      Secretariat TSI: Mrs. P. J. M. den Hollander
      Prins Bernhardlaan 36
      3722 AG Bilthoven
      The Netherlands
      Tel/Fax: +31 30 2281821
      e-mail: jdenhollander@crystal.feo.hvu.nl
      WWW: Pending Update - TSI
      Addresses for TSI representatives in 26 countries world-wide.
    • Tuberous Sclerosis Association of Great Britain
      WWW: TSA
  • Venereal Disease
    See Social Health
  • Vitiligo
    • Frontier's International Vitiligo Foundation
      4 Rozina Ct.
      Owings Mills, MD 21117
    • National Foundation for Vitiligo & Pigment Disorders
      9032 South Normandy Dr.
      Centerville, OH 45459
      Tel: 513-885-5739
    • National Organization for Albinism and Hypopigmentation
      1530 Locust St.
      Box 29
      Philadelphia, PA 19102
      Tel: 800-473-2310
    • National Vitiligo Foundation, Inc.
      Box 6337
      Tyler, TX 75711
      Contact: Allen C. Locklin, President
      Cheryl McInnis, Director
      Tel: 903-534-2925
      FAX: 903-534-8075
      e-mail: 73071.33@compuserve.com
      WWW: National Vitiligo Foundation. Inc.
  • Xeroderma Pigmentosum
    • Xeroderma Pigmentosum Society
      57 Sleight Plass Road
      Poughkeepsie, N.Y. 12603
      Contact: Mrs. Caren J. Mahar
      Tel: 914-473-4735
      e-mail: xps@mhv.net
      WWW: XPS Home Page
    • Xeroderma Pigmentosum Registry
      Department of Pathology
      UMDNJ - New Jersey Medical School
      185 South Orange Avenue
      Newark, NJ 07103
      Contact: W. Clark Lambert, MD
      Tel: 201-982-4405
 
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