As part of the Morphea Registry and DNA Repository, researchers are seeking the following:
Adults and children (at least three years of age) who have been diagnosed with morphea or localized scleroderma. There is no exclusion by sex or ethnicity.
If the diagnosis is unclear, a skin biopsy from a morphea lesion may be required (free of charge).
Pediatric healthy controls. Controls are non-blood related individuals who are not affected with an autoimmune disease (click on the following link for a listing and description of autoimmune diseases: http://www.aarda.org/patient_information.php) and do not live in the same household with a morphea patient.
Availability for annual follow up via provided contact information.
There are no costs associated with the study (including blood work, skin biopsy or shipment of materials).
No treatments will be administered. However, members of the registry will be the first to benefit from any treatment investigations being conducted at UT Southwestern.
Children under the age of 18 must be accompanied by a parent or guardian if the child comes to UT Southwestern for enrollment.
UT Southwestern has been gathering patient information since summer 2007. For further details and any questions, please contact Memoree Lee or Christina Carrigan, RN (Coordinator, Clinical Research) at the Morphea Registry office:
E-mail: morphearegistry@utousthwestern.edu
Office: (214) 645-8971
Fax: (214) 645-8972