The purpose of this study is to create a national registry of people with morphea in order to answer the questions associated with morphea (clinical prognosis, cause and disease predictors). A large database of information from patients and their family members will help researchers discover what causes the disease and how to prevent it, and establish more effective treatments.
Blood samples, digital photography of affected areas, data regarding associated autoimmune disease in patients and their relatives and other clinical data are being collected from study participants at UT Southwestern. However, not all participants must visit UT Southwestern to enroll in the study as enrollment can be made through the mail or online. The goal of this registry is to collect blood samples from 500 morphea patients. No treatments will be administered as part of this study, but all participants will be notified of clinical trials being conducted at UT Southwestern. This study is for the purpose of data collection only.
UT Southwestern has been gathering patient information since summer 2007. For further details and any questions, please contact Memoree Lee or Christina Carrigan, RN (Coordinator, Clinical Research) at the Morphea Registry office:
E-mail: morphearegistry@utousthwestern.edu
Office: (214) 645-8973
Fax: (214) 645-8972