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Neuro-oncology - Support Groups and Resources

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At UT Southwestern Medical Center, we deliver excellent patient care by physicians trained in the nation’s leading medical schools and by treatment drawing upon the finest technological advances that research can bring. But we also believe that it is much more than that.

We also offer patients and their families support in a caring and compassionate environment, through our support groups and social services. At no cost to you, these services help link you to a variety of community services, education, transportation and counseling. Our services deliver the assistance you need as you move forward on your road to healing and improved health.

Support Groups

The Annette G. Strauss Center for Neuro-oncology's Gekiere Family Psychosocial Support Program provides group-oriented professional counseling, support and education to enhance quality of life for patients and their spouses. This educational and support-group process contains a series of focused modules for group study. Topics include stress management, coping skills, dealing with anger and uncertainty and grief.

For more information, please call 214-648-4190.

Web Sites

Acoustic Neuroma Association
http://anausa.org/

The Acoustic Neuroma Association is a patient member organization, providing information and support to people diagnosed with or treated for acoustic neuroma and other benign tumors of the cranial nerves. The organization publishes a quarterly newsletter, distributes patient information booklets, presents a biennial national symposium, provides access to a network of local support groups and maintains a Web site for patient information and discussion.

American Brain Tumor Association
http://hope.abta.org/

The American Brain Tumor Association was founded in 1973 by two families who lost children to brain tumors. They vowed to find answers through research. Today, the ABTA is a global organization making major strides by funding brain tumor research and providing the information patients need to make educated decisions about their health care. It is the patient’s source for information about brain tumors, new treatments and help living with the diagnosis of a brain tumor.

CyberKnife Society
http://www.cksociety.org/

The CyberKnife® Society is dedicated to bringing together diverse medical professionals affiliated with radiotherapy worldwide to foster scholarly exchange of clinical information, and to educate the public with patient information on treating medical conditions such as cancers, lesions and tumors anywhere throughout the body using the CyberKnife, most of which are unreachable by other radiotherapy systems.

International Radiosurgery Support Association
http://www.irsa.org/

The International Radiosurgery Support Association is an independent organization dedicated to providing emotional support, education and referrals for treatment to patients worldwide. It also delivers educational information on stereotactic radiosurgery to governments, regulatory agencies, insurers and referring physicians.

National Brain Tumor Foundation
http://www.braintumor.org/

The National Brain Tumor Foundation is a national non-profit health organization dedicated to providing information and support for brain tumor patients, family members, and health-care professionals, while supporting innovative research into better treatment options and a cure for brain tumors. This Web site was created by brain tumor patients, family members, friends, doctors and nurses.

National Cancer Institute
http://www.cancer.gov/

The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program.

The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health-information dissemination, and other programs with respect to the cause, diagnosis, prevention and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

The Brain Tumor Society
http://www.tbts.org/

This Web site offers the latest information for the entire brain-tumor community, from newly diagnosed patients to survivors, families and health-care professionals.  It is an excellent patient and family resource. 



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