Pediatric Multiple Sclerosis and other Demyelinating Diseases Database

Study ID
STU 032012-085

Cancer Related
No

Healthy Volunteers
No

Study Sites

  • UT Southwestern-Other
  • Children's Medical Center-Dallas

Contact
Samuel Hughes
214-645-7977
samuel.hughes@utsouthwestern.edu

Principal Investigator
Benjamin Greenberg

Summary

Patient information will be collected and entered into a web based Electronic Data Capture (EDC) system. Patient data will include demographics, history of disease, and follow-up questions. Paper data collection worksheets will be used to record data for each patient. Data will then be transferred into a web based EDC system. The web based EDC system will be set up for remote data entry. Reports of specic data points can be requested and statistical analysis generated at the DCAC as needed.

This is a database and not a treatment study.

Participant Eligibility

-Patients a demyelinating disease of the central nervous system (CNS) prior to the age of 18