Health Topics Survey

Study ID
STU 112010-061

Cancer Related
No

Healthy Volunteers
No

Study Sites

  • Other Non-Affiliated Sites
  • UT Southwestern Moncrieff Cancer Center

Contact
Molly McGuire
214/648-7976
Molly2.McGuire@UTSouthwestern.edu

Principal Investigator
Celette Skinner, Ph.D.

Summary

Potential participants are approached at community events (e.g. Health Fairs), and asked if they would like to fill out a Health Topic Survey and indicate whether they are open to future contact. Potential participants who are referred to the Health Topic Survey will have the opportunity of completing the survey. The Health Topic Survey will not ask for any PHi unless the participant indicates, in response to one of the survey items, that he or she would like to be contacted in the future for research or quality improvement studies. The person would indicate this by providing name, address, phone number, and email address. Having indicated agreement for future contact, their survey and contact information are included in the Community Research Registry.

as part of on-going quality improvement efforts in patient and stakeholder engagement, uT Southwestern Medical Center Department of Clinical Sciences may invite CRR members to participate in a cognitive interview to ask them to share their thoughts about whether specific materials developed for studies or other projects are clear and easy to understand. Cognitive interviewing provides an opportunity to increase outreach and engagement with diverse community members of the Dallas-Fort Worth metroplex, strengthen research rigor, and foster fair and equitable opportunities to participate and inform the research process, independent of enrolling in any specific protocol as an actual research subject.

Participant Eligibility

Persons aged 18 and over who live in the Dallas-Fort Worth area and attend one of the community events, or are invited by referral will be eligible to complete the Health Topic Survey and indicate whether they are open to future contact. We are particularly interested in underserved populations such as Hispanics and African-Americans, as these groups have historically not been well represented in studies.

Cognitive interview recruitment to support research material quality improvement is limited to Community Research Registry members who speak either Spanish or English.